You’re parked outside, or standing in the hallway, and you don’t know what to say. Someone you care about is in hospice, and you’re afraid of saying the wrong thing, or of saying nothing at all.
Here’s the gentle truth: you don’t need perfect words. What people in hospice and their families remember most is that someone came. This guide walks through what research tells us matters at the end of life, and what helps: what to say, what to gently avoid, and how to help when words won’t come.
Free Printable: Gentle Words
Four pages: before and during your visit, words that help, words to gently avoid (and what to say instead), ways to help without words, and cut-out pocket cards to tuck in a wallet or a sympathy card.
Download Gentle Words (PDF) →No email or sign-up needed.
What Research Tells Us Matters at the End of Life
In a landmark national survey published in JAMA, researchers asked seriously ill patients, bereaved family members, doctors, nurses, chaplains, and hospice volunteers what matters most at the end of life. Among the things nearly everyone agreed were important:
- Achieving a sense of completion, like saying what needs to be said and feeling at peace with the people you love.
- Being treated as a “whole person,” not just a patient or an illness.
- Preparation for death, including knowing what to expect.
Patients also rated some things as important that doctors often underestimated, including not being a burden, helping others, and coming to peace with God.
That’s a helpful guide for visitors. You can help someone feel complete by saying thank you, I love you, or goodbye. You can treat them as a whole person by talking about the things they’ve always loved, not only their illness. And you can make sure your visit never feels like a burden: keep it short, and don’t expect them or their family to host you.
Before You Visit
- Check with the family first. Ask if it’s a good time, and how long to stay. Energy can change from hour to hour.
- Keep it short. Plan on 15 to 30 minutes. You can always stay longer if they want you to.
- Stay home if you’re sick, and wash your hands when you arrive.
- Bring something small, or nothing at all. A photo, a card, or a favorite song on your phone. Your presence is the gift.
- Expect changes. They may sleep a lot, look different, eat very little, or have trouble talking. The hospice team can tell you what to expect.
While You’re There
- Sit at eye level, close enough to hold a hand if that feels welcome.
- Say who you are when you arrive, even if they seem to be asleep.
- Let silence be okay. Sitting quietly together is a real kind of comfort.
- Follow their lead. If they want to talk about dying, listen. If they want to talk about the weather or the ballgame, that’s okay too.
- Talk to them, not about them, even if they can’t respond. A 2020 study that recorded brain activity in hospice patients near the end of life found that some patients’ brains still responded to sounds even when they were unresponsive. Researchers can’t say how much a person understands, but many hospice nurses encourage families to keep talking.
Words That Help
Simple, honest words are enough. Some to keep in your pocket:
- “I’m so glad I got to see you.”
- “I’m here. You don’t have to talk.”
- “I remember when we…” Share a happy, specific memory.
- “Thank you for…” Name something specific they gave you or taught you.
- “I love you.”
- “Is there anything you’d like me to know, or do?”
Four things that matter most
Hospice physician Dr. Ira Byock, in his book The Four Things That Matter Most, describes four simple phrases that can help people say what matters before a goodbye: “Please forgive me.” “I forgive you.” “Thank you.” “I love you.” They fit closely with what the research above found people value: a sense of completion. You don’t have to say all four, or say them all at once. Even one can be a gift.
If you don’t know what to say
Say so. “I don’t know what to say, but I’m here” is honest, and it’s enough. Or say nothing at all: hold a hand, read aloud, or play their favorite music.
What to Say to the Family
- “I’m so sorry. I’m thinking of you.”
- “You’re taking such good care of him.”
- “Can I sit with her so you can shower, or take a nap?”
- “I’m bringing dinner Tuesday. Is 5:30 okay?”
That last one matters. “Let me know if you need anything” puts the work back on an exhausted family. A specific offer is much easier to say yes to.
Words to Gently Avoid
Most people mean well, and no one gets it perfect. But a few common phrases can land hard. Here’s what to say instead:
- Instead of “You’re going to beat this,” try “I’m here with you, whatever comes.”
- Instead of “Everything happens for a reason,” try “This is so hard. I’m sorry.”
- Instead of “I know how you feel,” try “I can’t imagine how you feel. Do you want to talk about it?”
- Instead of “At least they lived a long life,” try “They mean so much to so many people.”
- Instead of “They’re in a better place,” unless you know it fits their faith, try “I’m holding you all in my heart.”
Ways to Help Without Words
- Bring a meal, run an errand, walk the dog, or mow the lawn.
- Offer to sit with them so the caregiver can rest.
- Help gather their stories. Our free Questions to Ask While There’s Time printable has gentle prompts.
- Help them write a letter to someone they love. Our legacy letter guide includes prompts and stationery, and a guide for writing on someone’s behalf.
- Send a card with a favorite memory. Families read these again and again.
If Children Are Visiting
Children can often visit too, if they want to and are prepared ahead of time. Our guide Helping Children Understand Hospice and Death covers what to tell them, what they might see, and free workbooks for kids and teens.
Take Care of Yourself, Too
Visiting someone who is dying is hard. It’s okay to cry in the car, before or after. It’s okay if you said something clumsy. What they’ll remember is that you came.
Please note: Noted & Charmed is not a medical or mental health provider. This guide and the Gentle Words printable are general information and comfort based on published research and guidance, not medical, spiritual, or professional advice. Please follow the guidance of the hospice team caring for your loved one.
Download Gentle Words (PDF) · See all our free printables for families
These resources are free, always. If they helped your family and you’d like to say thank you, you can leave a small gift here.
Are you a hospice professional? See our free resources for hospice and care teams.
Sources
- Steinhauser, K. E., Christakis, N. A., Clipp, E. C., McNeilly, M., McIntyre, L., & Tulsky, J. A. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA, 284(19), 2476–2482. Link
- Blundon, E. G., Gallagher, R. E., & Ward, L. M. (2020). Electrophysiological evidence of preserved hearing at the end of life. Scientific Reports, 10, 10336.
- Byock, I. (2004). The Four Things That Matter Most: A Book About Living. Free Press.